Data_Sheet_1_Having Our “Omic” Cake and Eating It Too?: Evaluating User Response to Using Blockchain Technology for Private and Secure Health Data Man.docx (287.83 kB)

Data_Sheet_1_Having Our “Omic” Cake and Eating It Too?: Evaluating User Response to Using Blockchain Technology for Private and Secure Health Data Management and Sharing.docx

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posted on 12.02.2021, 05:15 authored by Victoria L. Lemieux, Darra Hofman, Hoda Hamouda, Danielle Batista, Ravneet Kaur, Wen Pan, Ian Costanzo, Dean Regier, Samantha Pollard, Deirdre Weymann, Rob Fraser

This paper reports on end users' perspectives on the use of a blockchain solution for private and secure individual “omics” health data management and sharing. This solution is one output of a multidisciplinary project investigating the social, data, and technical issues surrounding application of blockchain technology in the context of personalized healthcare research. The project studies potential ethical, legal, social, and cognitive constraints of self-sovereign healthcare data management and sharing, and whether such constraints can be addressed through careful design of a blockchain solution.

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